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Author Gammelgaard, A.; Knudsen, L.E.; Bisgaard, H. url  doi
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  Title Perceptions of parents on the participation of their infants in clinical research Type Journal Article
  Year (down) 2006 Publication Archives of Disease in Childhood Abbreviated Journal Arch Dis Child  
  Volume 91 Issue 12 Pages 977-980  
  Keywords Altruism; Asthma/epidemiology; *Attitude to Health; *Biomedical Research; Child, Preschool; Denmark/epidemiology; Humans; Infant; Infant, Newborn; Mothers/*psychology; Motivation; Perception; Prospective Studies  
  Abstract OBJECTIVE: To analyse the motivations and perceptions of parents on the participation of their infants and young children in a comprehensive and invasive clinical research study. METHODS: Semistructured qualitative interviews were conducted with 23 mothers with asthma whose infants and young children were participating in the Copenhagen Prospective Study on Asthma in Childhood. The interviews were audiotaped, transcribed and analysed using the template analysis method. RESULTS: Parents were motivated by altruism and by the opportunity to get their child checked regularly by medical experts to prevent the possible development of asthma. Parents found it very important that their children enjoyed their visits to the research clinic, and that they could withdraw from the study if their child started responding negatively to those visits. No apparent difference was seen in the attitude between the parents of children with lung or skin symptoms and those of healthy children. CONCLUSIONS: It is possible to design and accomplish invasive clinical research on infants and young children in a manner that parents find ethically sound.  
  Address Department of Medical Philosophy and Clinical Theory, Institute of Public Health, University of Copenhagen, Copenhagen N, Denmark. a.gammelgaard@medphil.ku.dk  
  Corporate Author Thesis  
  Impact Factor 02,899 First Author Gammelgaard, A. Editor  
  Language English Summary Language Original Title  
  Series Editor Series Title Abbreviated Series Title  
  Series Volume Series Issue Senior Author Bisgaard, H.  
  ISSN 0003-9888 ISBN Medium  
  Area Expedition Conference  
  Notes PMID:16820387; PMCID:PMC2082979 Approved no  
  Call Number Serial 197  
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